- This is the flare that never ends…it just goes on and on my friends…
- It’s beating me up, I have constant migraines, allodynia, insomnia/hypersomnia, extra mean myofascial pain syndrome, nausea, dizziness, stomachaches to end all stomachaches, etc…I’m really enjoying myself. On the plus side, I get to take it easy and not beat myself up about getting things done; when I’m this sick, I understand the whole disability side of things.
- I hope Florida allows me to take a vacation from the pain as much as it does from this snowy location.
- I saw Beyonce’s half-time show this morning, and I swear I would give just about anything for even 1/10th of her energy. It made me need a nap just looking at her!
- My kitty is sickly…I’m watching him today and he seems a little more peppy…but I need to make sure he doesn’t need a vet trip! I slept next to him for the majority of last night, just because I’m a worried cat momma – I think it’s just a cold.
- A severe PTSD reaction after watching a couple episodes of a television show. I felt really lame that a character on the television could have me shriek-crying, but her character just reminded me so much of people from my past…
I have many years of practice…
It goes out wayyyyyy more than I do…there is no comparison!
What are you struggling with this week in regards to chronic illness or the ups and downs of life? How do you all make yourselves feel better when you are in a particularly bad flare?
xoxo,
Annie
I laughed out loud about the trash going out more often than me!
We don’t need to go out to have friends and it’s my friends that get me through the tough stuff. Postcards in the letterbox are my favourite, text messages for the urgent stuff, emails for storytelling and distraction and the phone for good days
For the allodynia, modal and silk t-shirts and cashmere tracksuit pants. I was a bit jealous to hear about your snow but must admit I’m enjoying summer a lot more than winter. Hope Florida is gloriously sunny for you!
My other saviours are baths (I’m so glad for my bath pillow) and looking at art galleries online since I have the luxury of time and since I read somewhere that looking at art makes you happier.
Where is your favourite gallery?
I hope little kitty-kat gets well soon.
Hi Annie
Sorry to hear you are having such a tough time. Also loved the trash postcard. I was saying to friends at the weekend that I feel life is much more restricted and was wondering whether it is becoming too easy to say I’m unwell. As I said it I realised the difference is trying to move from boom or bust to a fairly steady level of ok. So in one way it is more restricted but in another it is less restricted for a longer period – if that makes any sense! And today I have started to realise that managing home, bouncy dog, some chatting/visiting friends, doing 2-3 hours a day of work in half hour chunks, my therapy course, and going for a a massage or similar most weeks, might be about my limit. Still sounds a lot when I say it but I’m expecting to be able to do so much more. I probably could if I didn’t talk to people or walk Bobby.
I make myself better by hugging a hot water bottle, stroking Bobby, getting someone else to walk him, and taking to the sofa, listening to lovely music or watching something funny. Rest is the only thing I know really makes a difference, that and co-codamol!
Reading some of your blog caused me to want to send well wishes your way, also helped me to realize I am so right there with you. Reading about others like we are since I have signed up on twitter has brought an enormous amount of light to my illnesses. I have struggled all my life with one illness after another. When you mentioned PTSD I smiled with tears in my eyes. I have so often felt that I suffered from it, but, I don’t really know. I pray you are feeling better today. Thanks for sharing, it makes it so much better to know I’m not alone.
Sending lots of positive thoughts your way, hope you begin to feel a little bit better soon. I really love your blog, and how open you are, it makes me realise I’m not going through this alone, and that it is ok not to be ok. Recently I’ve been finding it so hard to stay positive, I’ve just been officially diagnosed with M.E and my doctors are telling me it’s time to look at going back to work. Why won’t they listen to me when I tell them I can hardly move? Instead of forcing me to get on with it, they should be offering support. Do you have any advice on how I can try and beat this feeling?
PS.. I hope your cat is ok!
Hayley-Eszti x
http://www.hayleyeszti.blogspot.com
Thank you everyone for your kind words <3
We are all in this together and all of us help fight for each other in our own little ways. You have no idea how much your comments mean – I'm always struggling to keep up the blog and you are the people that give me the desire to keep on…
Hayley,
It is okay not to be positive all of the time because this illness is cruel. You will be judged by some doctors and friends, but people who are in the same boat will always have your back. Remember when you feel alone, people who care live right in your computer! I never was able to go back to work. I hope you will keep me updated on your struggle.
*lots of love to all of you*