Monthly Archives: July 2010

Sunshine and Happiness

Sunshine and Happiness

I may be sick.  I may not be able to get out of it.  Somehow, I am more or less coming to terms with all of this.  I don’t think it ever becomes fully adjusted to as a lifestyle choice, but one has to do what they have to do.


I am back on all of my meds (and never went remotely cold turkey!!), and my body and brain are slightly more comfortable but they still aren’t working.  Countdown until next doctor’s appointment is on.


Until then, I purchased all of Gala Darling‘s podcasts/writings to read/listen to, as I think she is so fantastic! I can’t wait to have the energy to go through them all.  


On top of that, I’m doing my best to create lists of easy to make foods so that I can try and take care of myself once I move back into my Charlottetown apartment.  


I am trying to listen to my body more (although it is sometimes impossible to understand!), and working on bringing some new med ideas to the doctors’ appointments in the upcoming month.


What is helping me to get by?

Have any of you tried to do a med cutback and failed??  Any stories you’d like to tell!  Any pick me up articles you want to direct me too?  I love the support!

xoxo,
Annie

Love Me Fridays

Love Me Fridays

Things that are making my life tolerable through this week:

  • My mom seems to be okay.  I love her.  She is amazing.  I cannot lose her.  I appreciate her in so many ways, and the thought eats me up inside.
  • Jonathan has been wonderful and supportive.  I think we are going to come out okay too.
  • I am able to write again(ish)!  My head has been in such a bad spot that I couldn’t even put thoughts together.
  • My sister is home for 5 days!!! I so rarely get to see her and she is the cheeriest, most wonderful treat!
  • A queen size bed – Jon and I seriously need to invest in one.  Good life choice.
  • To know that support is out there, no matter how isolated I feel.  I just need to learn to reach out.  Which is a surprisingly hard thing to do.
  • The raising again of my medication. Scary to think how much control something has over your life.  Still, I feel somewhat better than I did before!
  • Coffee ice cream.
  • Half priced nights at the movie theater!
  • My stuffed dinosaurs!
  • Sleeping on top of the bed with a quilt, trying to trick my brain into thinking it is a nap so I can chill out…yes, I’m neurotic.
  • I wrote a to-do list!  I haven’t done anything, but it was a start!  
  • Ginger snaps…for being there for my nausea beast :)
(Images from WeHeartIt)
What are you loving this Friday?? Fill a girl in!
xoxo,
Annie

How To Fail At Detoxing

How To Fail At Detoxing

Lately, my posts have been kind of scattered and out of sorts.  It’s been a rough week.

MY WAYS TO FAIL AT DETOXING 
  1. Spend your time going to the beach while in withdrawal.  I was wrapped in a wool blanket on the beach freezing to death because of a fever, and full of tremors. Painful and not fun.  Do not recommend.  
  2. Go down slightly on one medication and get so depressed that you completely depersonalize yourself from your body – subsequently, decide offing yourself is the best answer, but get guilt-tripped into avoiding it.
  3. Go down slightly on another medication and feel a burning sensation all along your spine as well as aches and pains all over.
  4. Become intolerable to family members to the point where they forcibly shove the meds back in your mouth again and you don’t have the energy to care.
  5. Have your poor mom have a mini-stroke in front of you while being at home attempting to avoid stress! (THANK GOD SHE’S OK).
  6. Proceed to wonder if you even have the possibility to get off drugs or if you are permanently chained to them.
  7. Take note of the fact that in order to live, at least one of the drugs is going to keep getting higher.  Decide that you might as well just go with it, and get back on higher dosing as the lower is failing even worse (although it is hard to tell if the body would ever adapt…).
  8. Feel like you once again failed yourself (although I was told to look at it as an experiment and that helped!).
  9. Instead, decide to make plans that you can post on your walls so that you can know how to take care of yourself every day.
  10. Continue putting it off because you are too sick to come up with decent ideas…
So that is where I am currently.  What do you think?  I wish I could make a decision either way, but I feel like I’m damned if I do and I’m damned if I don’t.
Have any advice?  Any ways to fail to add to the list? Stories?  Do tell!
xoxo,
Annie

Pop Culture Wednesday

Pop Culture Wednesday

I don’t have a whole lot of energy to write this post, but I’m going to anyways. I want to keep my life as regular as possible, and I love this blog more than just about anything!  Thank you for all of your love and support yesterday, I’m feeling better about potentially someday having a normal life :) .

I haven’t watched much (or read, or moved, or anything…) lately, but here are some reviews of what actually went in my brain.

The Slammin’ Salmon:

 

 

 

 

 

 

 

 

 

 

 

This was one of the funniest movies I have ever watched in my entire life.  I did not expect anything of it going into it, but it kept me entertained the entire time (even if some of it is kind of horrible!!).  It a film that just one-ups each of its gags, but it is worth it for a laugh.  I need laughs right now.  I need to find myself a copy.

Match Point:

 

 

 

 

 

 

 

 

 

 

 

Smart, clever, sexy…but not in my favorite Woody Allen movies.  It just doesn’t have his humor, which is what I relate too most.  Still a fantastic watch, but certainly doesn’t make you feel any better about life by the time you come to the ending.  Save this movie for when you are willing to ponder the way the world works, and not if you are depressed.

Charade:

 

 

 

 

 

 

 

 

 

 

 

I put this on (one of my favorite movies of all time - dialogue wise!) and promptly fell asleep on the boyfriend. Either way, one of the most fun movies to use to steal your time!  It’s always lovely :) .

Inception:

 

 

 

 

 

 

 

 

 

 

 

AMAZING. As close to perfect as perfect gets. Go. ASAP. All I need to say.

Fill me in on your pop culture recommendations!!

xoxo,
Annie

Hard Road Ahead

Hard Road Ahead

Severe emotional dysregulation.

Potential high functioning on the autism spectrum.
No brilliant ideas as to how or why, just that they believe the disorder to have been there since birth.  
There are no great therapies or meds for the treatment of any of these, so I am considering just never leaving my room again.  But that would be a poor example for my beloved chronic illness readers. 
I am going to get my brain power back and I am going to get these things on track.  I’m a poet apparently.

I would take a picture of myself, but I haven’t washed my hair, showered, or changed my clothes in days. Screams depression and whatnot. 

Okay, sorry for the crummy blog post today.  I’ll be back in full force hopefully by tomorrow.

xoxo,
Annie

Things That Bug Me Mondays

Things That Bug Me Mondays

So, it’s been a downer of a week – let’s see if I can get some of it off of my chest!

  • My body hurts more than it ever has in my life. If it gets worse than this, my brain will check out!
  • Not being able to take care of myself :( – I’m trying to fight for my independence back, although sometimes I worry that it isn’t a fair battle.
  • I have to sleep alone and I’m having a terrible go with staying down for more than a couple hours at a time.
  • My brain hurts when I think of the spreadsheets I am going to be churning out this week, but I’m excited to make plans for change all the same!
  • The endless dark thoughts. I don’t like them, I don’t want them around…I play tv, movies, and music…but sometimes they creep in all the same.
  • The fact that my boyfriend’s mother is feeling so horrible and that I can’t do anything to help!
  • I have to spend money…but it will be on getting a cell phone so I can stay in touch with people!
  • The fact that even though it hurts for me to lay in bed and type this –> I’m not writing any more negative things.  This change is going to be for the better.  No matter what.  

(Images from WeHeartIt)
Okay everyone, come rant along with a girl as she finds it painful to lay in bed!  Everyone needs a good dose of grump now and then! 
xoxo,
Annie
(your pukey, but beloved blog writer haha)

Justification Of My Actions

Justification Of My Actions

So, I’ve gotten the occasional comment on twitter that what I’m doing right now does not look right.


As a result, I figured that I might as well try to justify my position on an issue that some of my readers don’t know about.  Currently, I am in the process of trying to reduce and then fully detox from most, preferably all (but unlikely), medications that I am taking.
For 9 days straight while on all of these medications, I bawled my eyes out 24/7.  They obviously were not working in any way, shape, or form.  I’m not on first line medication treatment for any of my diagnosed illnesses.  Why no doctor supervision?  Well a) they are all conveniently on vacation and b) none of them have ever dared to want to follow me through the course of changing.
I moved home to live with my parents, at least for the next couple of weeks.  Not exactly what a girl at 23 plans, but I am too sick to function, and my mother is a brilliant caregiver (and pharmacist!).
These first 2.5 days with lessened medication in my body have been hell.  I’ve had a fever that shook me to the core, tremors, nausea, vomiting, panic attacks, collapsing, and excruciating pain.  I have tried to detox like this many times, and have always quit by the third day.  This time I am determined.
I don’t necessarily believe I could live a life without drugs, although I think it is a brilliant idea in concept.  I just need to be on the right drugs.  And in order to do that, I need to come off of the wrong ones.  
  • No matter how much it hurts
  • No matter how much I cry
  • No matter how hard of a process it is
This is happening.  The course I am on right now = death. I don’t want that to happen, and I’m willing to fight however hard I need to fight.  
xoxo,
Annie

Some Saturday Lovin’

Some Saturday Lovin’

So far, the last two weeks have been closer to hell than I really wanted to know about – so I’m going to post pictures of cute, fuzzy animals that may make me (and some of you!) feel better.

(Images from WeHeartIt)

Send me all your warm fuzzies people! I’m detoxing from meds and so far it has been about negative amounts of pretty :( .

Lots of love,
Annie

Love Me Fridays

Love Me Fridays
  • Cleaning to music.  In fact, doing anything to music.  I don’t care, I just want music on!
  • My boyfriend has been wonderful to me since our little moment of instability.
  • Air conditioning…I feel like I’m going to keel over and die in this heat…in fact, I did keel over haha.
  • Tweetdeck on my computer now.  I get excited any time a message pops up!
  • My online besties. They know who they are and they know I love them to pieces.
  • The fact that today I feel like my body/mind is about 20% less spastic…the med reduction is totally slowly working (probably from the mass clonazepam…)
  • Being able to feel strength in my legs for the first time all week! Wooo, I missed walking!
Ack, I’m having difficulty with this because this week has really just been absolutely miserable. Okay, regroup.
  • The fact that I got to get to know my friend and her daughter better by staying at her house all weekend.
  • The Internet for running some distraction.
  • It briefly cooled down on this Island. Thank God.
  • I can’t wait to see Inception and Salt!
(Images from WeHeartIt)
I’m having a really hard week my loves! Tell me what you are grateful for this week!
xoxo,
Annie

Meltdowns 101

Meltdowns 101

So today I am going to talk about meltdowns, as I have a serotonin toxicity thing going on in my body.

I know we all have them.  Those with a chronic illness tend to have them a bit more than average.  I might even have them a bit more than average of the chronic illness group hahaha.

I have meltdowns over money because I can’t work.
I have meltdowns over feeling like a burden.
I have meltdowns over being scared I’m going to die.
I have meltdowns over the fact that sometimes dying crosses my mind as a good thing.
I have meltdowns over the amount of anxiety from not properly controlled brain chemicals/hormones.
I have meltdowns over keeping my boyfriend awake when he has to work in the morning and I don’t.
I have meltdowns over large groups of people and lots of noise.
I have meltdowns over the idea of living a long life with this much pain.
I have meltdowns over the fact that a simple shower or hug can hurt me.
I have meltdowns that I am only 23 years old and seriously lack on the ability to have fun.
I have meltdowns because no one I know in person understands what I am going through.
I have meltdowns because the people that do understand are in the Internet world and I wish I could be with them when they are in pain.
I have meltdowns that my boyfriend will no longer find me attractive.
I have meltdowns when people change their plans with me at the last minute because it takes me so long to prepare for any outing.

Basically, I have started Cryfest 2010.

As a result, I’m sorry if I’m behind on reading people’s blogs – I can hardly manage to write my own.  For some reason I choose to do this instead of anything else.  I need the therapy of it I think.

(Images from WeHeartIt)

Anyone else having meltdowns these days??

xoxo,
Annie