Monthly Archives: March 2010

Things That Bug Me Mondays

Things That Bug Me Mondays

Mmm…I am absolutely exhausted at the beginning of this week.

Let me start my bitchfest, shall I??
  • The fact that my meds are SO hard to adjust.  Pain alleviates when I up the SSRI, but I turn into a complete and total head case.  Zero emotional control.  
  • As a result of this current brain chemistry, I have a continual chest pain knot that I have had off and on since I was 13.  Not pleasant.
  • Loneliness.  I’m becoming close to a hermit.
  • Excessive thoughts of existentialism.
  • The fact that my earrings seemed to have gotten lost in the mail :(
  • Getting stuck in a crowd of people.
  • Having to take my paper snowflakes off of the windows because it isn’t winter anymore! (The first part boo – the latter yay!)
  • Waking up and still having a headache.
Ick.  Mondays.
What’s getting you down??
xoxo,
Annie

Chronic Illness and Work

Chronic Illness and Work

THE ChronicBabe herself, Editrix Jenni, asks about our thoughts on chronic illness and work, (“bringing home the bacon” as they say), this time around for our blog carnival.

(Image from WeHeartIt)

This is a touchy subject on my part.  I am currently unemployed, as well as being completely unable to hold down a job as a result of my current state of health.  I do not have disability support.  I bring in absolutely NO income and manage to be a reasonable financial burden, carried by both my parents and my boyfriend/common-law.  I have also never held a job longer than 3 months in my entire life.

As a result, I place a serious amount of guilt upon myself (even though I know I should be kind and forgiving!).  I feel like I SHOULD be able to find something to bring in money, or at least try and stay healthy enough to work part-time hours.  So it goes…mental battle ensues.

I set one goal for myself in the last six months and that was to get this blog in shape and attract 100 unique visitors a day.  I wanted to treat it like a job, my one connection to the kind of lives so-called “normal” people live.  I am happy to say that I have only missed posting one day on this blog in the last few months.  In my opinion, that’s a pretty good track record.  I do this to remind myself that I actually am just sick and not somehow lazy without my knowledge.

I daydream every single day about the possibility of making money from my writing.  It’s something I can do at any time, and I surely seem to have something to say about every subject.

But when it comes right down to it…I cannot currently keep myself alive.  I am dependent on others.  I often worry that maybe it’s because I’m not clever enough to come up with a brilliant ‘make money at home’ strategy.  Or maybe I just don’t have the energy.  Who knows?

Either way, it’s not a nice feeling.

xoxo,
Annie

Love Me Fridays

Love Me Fridays
  • The fact that I’m finally starting to feel better(ish) after having my body attacked by something rather violent that upped both my fear of death and desire for death at the same time.
  • Britain’s Next Top Model being so gosh-darn amusing.
  • The poems of Emily Dickinson.
  • Having the BEST boyfriend who takes super-good care of me when I am sick (which God knows, is a lot!).
  • The fact that Spring appears to have sprung!
  • My mom just for being cool.
  • Having my life sucked into other people’s Tumblrs.
  • All the well wishes I got in blogging land.
  • Grooveshark
  • Green is Sexy a website by the lovely actress Rachel McAdams!
  • The fact that my friend Sarah is so wonderful that she loaned me an entire pile of Adbusters magazines to read as I lay on the couch!
  • Pictures
(Images from WeHeartIt)
So beloved blog readers…what are you loving this week????
xoxo,
Annie

Pop Culture Wednesday

Pop Culture Wednesday

It’s been another week heavy on the movies.

Alice in Wonderland

I was not all that impressed with this one.  I went in after hearing a mixture of good and bad reviews, and have to say that my opinion lands squarely in the middle.  The movie is okay.  Nothing special.  The actress who plays Alice has absolutely no emotion on her face and none of the characters have any depth.  All the 3D felt gimmicky and I just found myself bored.

Shrink

I really enjoyed this quirky little film.  I’ve always liked seeing Kevin Spacey on screen, and this fits in with my ‘the world is bleak but find beauty in it anyway’ worldview.  He plays a prominent LA psychiatrist whose wife has recently committed suicide.  As a result, he finds solace in marijuana and slowly finds himself less and less able to help his patients.  Art is made as a result of his and one of his patient’s tragedies.

The Reader



Well this one was bleak.  It was an interesting way to tackle such taboo subject matter, with Ralph Fiennes’ young character remaining tied to his first love, a much older woman in prison for life as a result of her actions within Nazi Germany (despite the fact that she was framed for a much worse role).  This movie shows the impact that individuals can have on each other’s lives and is incredibly well done – but don’t expect to have your spirits lifted high.

Food Inc.

I already eat fairly healthily, but after watching this film, I felt as though I needed to make a stand regarding my food choices.  That is what they are going for obviously, and it works.  This movie is disturbing and disgusting.  It is a film that I believe every single individual should be responsible to see.  You will think about where you purchase what you put in your mouth from that point forward, as well as its contents.

That’s all for now, as I’m sleepy and need to go to the doctor in the morning.

xoxo,
Annie

Chronic Illness and Life Goals

Chronic Illness and Life Goals

Vladimir at Wellbook is hosting the next edition of the Patients for a Moment Blog Carnival and he asks a question that stirs a lot of mixed emotions in me.  He wonders - ”how have you learned to adapt around your illness in order to accomplish things that are important to you – even though your illness may prevent you from achieving the goals you had before you got sick?”

I never had ‘prior’ goals to becoming ill.  I have been ill since the day I was born.  Some years have been better than others, and yes…I will admit that I started to set my sights on life higher during those times.  
For most of my life I was an incredibly confused child when it came to dream professions or ways of life.  As a result, I would basically mimic whoever I had decided was living a decent lifestyle at the time.  Whenever I was at home, I would basically sit cross-legged with a book and daydream about nothing I can remember, as I felt I didn’t have a talent in the world.  Once I discovered people like Amanda (who writes at Pink Robots Need Love Too), I wanted to be athletic and super-social and disorganized!  She inspired me, so I tried to live like her.  I did the same thing to Leslie (who blogs at Silent All These Years) in the junior high years, joining Allied Youth to feel like part of something.
Around this time, I found out I had a photographic memory and that I could get EXCELLENT grades.  That was my life for the next…7 years or so.  I would sleep, eat, and dream education.  Plus, it worked perfectly as  someone with chronic illness (as both high school and university deal better with absences than work).  I was miserable and uninspired the entire time, and I’m not sure I would do it again if I had the chance.
I lost my photographic memory (actually a fair amount of my memory) when I was 19 years old.  This is when the illness severely took over my body, and I ended up having to move home to live with my parents.  I finished university online due to their urging (and am thankful I did).  I am still reasonably intelligent, just not the same.
Since those days, I’ve tried to get numerous jobs.  I have never worked more than a 2-3 month stretch in my entire life.  Those are the longest good stretches I’ve had.  I’ve never held an adult job.  
I am a late-bloomer at learning who I actually am.  Bed-ridden chronic illness has actually helped this process more than one would ever think.  I now know how much more I appreciate writing and art!  I know how much I want to stand up for rare diseases and mental illness – as there is so much stigma placed against them!
If I ever get this illness under control – I think I’ll be able to follow those dreams.  But in a way, it definitely helped me get to where I needed to be.

Chronic Babe Bloggers’ Blog Carnival (Favorite and Most-Useful Coping Mechanisms)

Chronic Babe Bloggers’ Blog Carnival (Favorite and Most-Useful Coping Mechanisms)
I’m hosting the Chronic Babe Bloggers’ Blog Carnival on a topic very near and dear to those of us with chronic illness – how to cope when things get too painful/overwhelming.  Here are the ideas that were sent to me!
Diana Lee at Somebody Heal Me: The Musings of a Chronic Migraineur posts about her love of the NCAA March Madness, and how getting swept up in something that isn’t daily life can help distract from the daily challenges at http://somebodyhealme.dianalee.net/2010/03/tournament-time-helps-my-sad-sack-guilt.html.
Assiya at For A Fairer Today writes about how studying disability has empowered her to embrace her illness and stand up for her rights at http://fairertoday.blogspot.com/2010/03/studying-disability-my-coping-skill.html.
Selena at Oh My Aches and Pains writes about how she has learned to make various parts of her life fibro-friendly (especially gardening!) at http://www.ohmyachesandpains.info/2010/03/my-favorite-fibromyalgia-coping.html
Vladimir at Wellbook Blog writes about his four favorite coping mechanisms for chronic illness at http://wellbook.org/Note/325/My_Coping_Mechanisms.

Maureen at Mo Is Blogging…I Think writes her list of things she has accepted will never be the same and how she deals with this change at http://moisbloggingithink.wordpress.com/2010/03/21/love-me-the-way-i-am/.

Elisabeth at Redefining Good has a wonderful list of her guaranteed cheer up practices!  I’ll have to try some of these out!  Read the post at http://redefininggood.wordpress.com/2010/03/22/coping/.

As for my own personal favorite and most-useful coping mechanisms:

  • Taking a hot bath.  I find harsh temperature changes too much to deal with though, so I start by plugging the bathtub and then sit in the shower for awhile.  Once my body gets used to the heat, I fill the rest of the bathtub with warmer water :)
(If only I looked this good doing it!)
  • Watching good movies/bad tv/reading.  Unfortunately, the more sick I feel and the more pain I am in, the less attention I can commit to this endeavor.  I’m thinking I might start trying to get my hands on some audiobooks soon.
  • I have a very restricted diet.  I have Celiac Disease and something that is resembling gastroparesis.  Since I eat only soft food, I will try to have a special treat of dark chocolate and a nice cheese throughout the course of the day so it feels a little more special.
  • Trying to daydream my way through the pain.  Or dreaming of eating some of the foods I can’t eat.  Or taking vacations.  Anything to help me cope with my limitations.  
(Images from WeHeartIt)
  • When REALLY sick, I plug in my iPod and just try to lay still and let the music distract my brain from the pain.
  • Pills.  I know this is a bad coping skill (habit), but I often see no other options.  When everything else has failed and you are too uncomfortable to consider that continuing living is a reasonable option, you take some pills.  I do what I have to do to survive.
Now I want suggestions people!!!  If you have any good coping mechanisms that you want to share, please do so in the comments – I always need new ideas!

xoxo,
Annie

Things That Bug Me Mondays

Things That Bug Me Mondays

Wow, it’s Monday again already.

Things that are getting to me this week in my once-allowed crank-pot session:

  • The fact that I get such severe side effects (particularly severe akathisia) from starting the Zyprexa up that I’m off of the drug one day after it is prescribed to me.  Blargh.
  • My apartment needs to be cleaned.  Badly.  I have been putting it off for many days, but now that I’m capable of getting up and moving for brief periods again, I really should take care of it.
  • I was disappointed in how many bloggers wrote for the Chronic Babe/General Chronic Illness Carnival – I started with 2 but at least got 2 more last night.
  • The fact that my computer continually overheats.  And that megavideo cuts me off all the time.  I really should just pay for a subscription and get it over with.
  • I keep trying to come up with interesting food combinations, but with how little I can eat these days…I’m falling pretty flat.
  • My skin is not getting better even with the antibiotics.
Otherwise,
I think this is funny and anyone who loves Ben Folds and is not afraid of the occasional curse word and chatroulette should totally check it out!

(Images from WeHeartIt)

What about you??  What’s making you be grumpy this Monday??

xoxo,
Annie